Abstract
The aim of our study was to provide a psychosocial and psychiatric evaluation of patients with epidermolysis bullosa (EB;
a rare genetic disorder characterized by skin fragility), to assess psychological status, ascertain the presence of any psychiatric
disorders and understand the impact of EB on quality of life. Twenty-five patients were assessed using a case record form
and several standardized instruments. In 82% of patients, EB had a negative impact on quality of life and 80% of patients
experienced psychiatric symptoms. Our findings revealed a high prevalence of psychosocial problems and psychiatric symptoms
in patients with EB and suggested that a combined bio-psychosocial approach is the most appropriate therapeutic intervention.
a rare genetic disorder characterized by skin fragility), to assess psychological status, ascertain the presence of any psychiatric
disorders and understand the impact of EB on quality of life. Twenty-five patients were assessed using a case record form
and several standardized instruments. In 82% of patients, EB had a negative impact on quality of life and 80% of patients
experienced psychiatric symptoms. Our findings revealed a high prevalence of psychosocial problems and psychiatric symptoms
in patients with EB and suggested that a combined bio-psychosocial approach is the most appropriate therapeutic intervention.
- Content Type Journal Article
- DOI 10.1007/s10880-010-9205-4
- Authors
- Francesco Margari, Department of Neurologic and Psychiatric Sciences, University of Bari, Policlinico-P.zza Giulio Cesare, 70124 Bari, Italy
- Paola A. Lecce, Department of Neurologic and Psychiatric Sciences, University of Bari, Policlinico-P.zza Giulio Cesare, 70124 Bari, Italy
- Wanda Santamato, Department of Neurologic and Psychiatric Sciences, University of Bari, Policlinico-P.zza Giulio Cesare, 70124 Bari, Italy
- Patrizia Ventura, Department of Neurologic and Psychiatric Sciences, University of Bari, Policlinico-P.zza Giulio Cesare, 70124 Bari, Italy
- Nicola Sportelli, Department of Neurologic and Psychiatric Sciences, University of Bari, Policlinico-P.zza Giulio Cesare, 70124 Bari, Italy
- Giuseppina Annicchiarico, Pediatric Dermatology Unit Policlinico, University of Bari, Bari, Italy
- Ernesto Bonifazi, Pediatric Dermatology Unit Policlinico, University of Bari, Bari, Italy
- Journal Journal of Clinical Psychology in Medical Settings
- Online ISSN 1573-3572
- Print ISSN 1068-9583