Abstract
This article examines the willingness of American Indian/Alaska Natives (AI/AN) to provide biological samples for research
purposes. Prior cases of abuse and misuse of individuals, materials, and data highlight ethical research concerns. Investigators
may be hesitant to engage AI/ANs in research projects. We conducted a survey of AI/ANs in the central plains region of the
US over 1 year. This convenience sample completed a series of questions on biological samples and research. Survey results
(N = 998) indicate that 70.15% of AI/ANs would be willing to provide saliva/spit for a specific study with the proper consent
and control of samples. In conclusion, researchers should find ways to work with and for AI/ANs, assuring participant input
in the research process.
purposes. Prior cases of abuse and misuse of individuals, materials, and data highlight ethical research concerns. Investigators
may be hesitant to engage AI/ANs in research projects. We conducted a survey of AI/ANs in the central plains region of the
US over 1 year. This convenience sample completed a series of questions on biological samples and research. Survey results
(N = 998) indicate that 70.15% of AI/ANs would be willing to provide saliva/spit for a specific study with the proper consent
and control of samples. In conclusion, researchers should find ways to work with and for AI/ANs, assuring participant input
in the research process.
- Content Type Journal Article
- Category Original Paper
- Pages 1-5
- DOI 10.1007/s10900-011-9502-3
- Authors
- Melissa K. Filippi, Department of Preventive Medicine and Public Health, University of Kansas Medical Center, MS 1030, 3901 Rainbow Boulevard, Kansas City, KS 66160, USA
- Kristin L. Young, Department of Family Medicine, University of Kansas Medical Center, 4125 Rainbow Boulevard, Kansas City, KS 66160, USA
- Niaman Nazir, Department of Preventive Medicine and Public Health, University of Kansas Medical Center, MS 1030, 3901 Rainbow Boulevard, Kansas City, KS 66160, USA
- Chandler Williams, Center for American Indian Community Health, University of Kansas Medical Center, MS 1030, 3901 Rainbow Boulevard, Kansas City, KS 66160, USA
- Travis Brown, Center for American Indian Community Health, University of Kansas Medical Center, MS 1030, 3901 Rainbow Boulevard, Kansas City, KS 66160, USA
- Won S. Choi, Department of Preventive Medicine and Public Health, University of Kansas Medical Center, MS 1030, 3901 Rainbow Boulevard, Kansas City, KS 66160, USA
- K. A. Greiner, Department of Preventive Medicine and Public Health, University of Kansas Medical Center, MS 1030, 3901 Rainbow Boulevard, Kansas City, KS 66160, USA
- Christine M. Daley, Department of Preventive Medicine and Public Health, University of Kansas Medical Center, MS 1030, 3901 Rainbow Boulevard, Kansas City, KS 66160, USA
- Journal Journal of Community Health
- Online ISSN 1573-3610
- Print ISSN 0094-5145