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End chapter: illness memoirs and narrative humility in shaping the language of palliative care

Palliative care communication often balances clarity with compassion, yet its professional and goal-oriented language can inadvertently mute the emotional and existential realities of dying. Illness memoirs, by contrast, linger in the texture of lived experience, offering narrative forms that resist closure and invite deeper engagement with mortality. This study conducts a comparative analysis of professional palliative care discourse and two contemporary illness memoirs, Paul Kalanithi’s When Breath Becomes Air and Jenny Diski’s In Gratitude, applying Rita Charon’s concept of narrative competence and Arthur Frank’s illness narrative typology to examine how each portrays and narrates the experience of dying. Kalanithi’s quest narrative integrates clinical insight with existential reflection, while Diski’s ironic, chaos-inflected style resists conventional narrative resolutions. Juxtaposing these with professional palliative care discourse reveals a narrative gap between institutional goals and the complex interior landscapes of dying patients. We argue that incorporating illness memoirs into palliative care education can cultivate narrative humility, enhance clinicians’ sensitivity to diverse narrative forms and improve the emotional and ethical quality of end-of-life care.

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Posted in: Journal Article Abstracts on 11/05/2025 | Link to this post on IFP |
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