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PROMIS® Parent Proxy Report Scales: an item response theory analysis of the parent proxy report item banks

Abstract

Objective  

The objective of the present study is to describe the item response theory (IRT) analysis of the National Institutes of Health
(NIH) Patient Reported Outcomes Measurement Information System (PROMIS®) pediatric parent proxy-report item banks and the measurement properties of the new PROMIS® Parent Proxy Report Scales for ages 8–17 years.

Methods  

Parent proxy-report items were written to parallel the pediatric self-report items. Test forms containing the items were completed
by 1,548 parent–child pairs. CCFA and IRT analyses of scale dimensionality and item local dependence, and IRT analyses of
differential item functioning were conducted.

Results  

Parent proxy-report item banks were developed and IRT parameters are provided. The recommended unidimensional short forms
for the PROMIS® Parent Proxy Report Scales are item sets that are subsets of the pediatric self-report short forms, setting aside items for
which parent responses exhibit local dependence. Parent proxy-report demonstrated moderate to low agreement with pediatric
self-report.

Conclusions  

The study provides initial calibrations of the PROMIS® parent proxy-report item banks and the creation of the PROMIS® Parent Proxy-Report Scales. It is anticipated that these new scales will have application for pediatric populations in which
pediatric self-report is not feasible.

  • Content Type Journal Article
  • Pages 1-18
  • DOI 10.1007/s11136-011-0025-2
  • Authors
    • James W. Varni, Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A&M University, 3137 TAMU, College Station, TX 77843-3137, USA
    • David Thissen, Department of Psychology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA
    • Brian D. Stucky, RAND Corporation, Santa Monica, CA, USA
    • Yang Liu, Department of Psychology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA
    • Hally Gorder, Department of Psychology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA
    • Debra E. Irwin, Department of Epidemiology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA
    • Esi Morgan DeWitt, Department of Pediatrics, Division of Rheumatology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, USA
    • Jin-Shei Lai, Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA
    • Dagmar Amtmann, Department of Rehabilitation Medicine, University of Washington, Seattle, WA, USA
    • Darren A. DeWalt, Division of General Medicine and Clinical Epidemiology, Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA