Abstract
Methods
A case–control study was conducted to evaluate the quality of life of children (5–12 years) with CD and one of their parents,
compared to the QoL of children without CD (and their parents as their caregivers ). The QoL was assessed by applying the
following questionnaires: AUQUEI (children) and WHOQOL-BREF (parents).
compared to the QoL of children without CD (and their parents as their caregivers ). The QoL was assessed by applying the
following questionnaires: AUQUEI (children) and WHOQOL-BREF (parents).
Results
QoL was evaluated in 33 children with CD, 63 children without CD, and of their respective parents as their parent caregivers
(96 adults). QoL total scores were similar between the groups of children with and without CD. However, in the Leisure dimension,
the scores of children with CD were significantly lower than those of the controls (P = 0.029). Similarly, when assessing the QoL of the parents, we found scores significantly lower in the social dimension (P = 0.0196) for parents of children with CD compared to parents of children without CD. Family income presented an impact on
the QoL in adults, but did not affect children. In CD group, children of mothers who had lower educational levels presented
better scores in the function dimension, regarding self-care and autonomy.
(96 adults). QoL total scores were similar between the groups of children with and without CD. However, in the Leisure dimension,
the scores of children with CD were significantly lower than those of the controls (P = 0.029). Similarly, when assessing the QoL of the parents, we found scores significantly lower in the social dimension (P = 0.0196) for parents of children with CD compared to parents of children without CD. Family income presented an impact on
the QoL in adults, but did not affect children. In CD group, children of mothers who had lower educational levels presented
better scores in the function dimension, regarding self-care and autonomy.
- Content Type Journal Article
- Pages 1-9
- DOI 10.1007/s11136-011-9930-7
- Authors
- Cláudia Maria de Lorenzo, Division of Paediatrics, Hospital Polydoro Ernani de São Thiago, Florianópolis, SC, Brazil
- João Carlos Xikota, Division of Paediatrics, Hospital Polydoro Ernani de São Thiago, Florianópolis, SC, Brazil
- Mônica Chang Wayhs, Division of Paediatrics, Hospital Polydoro Ernani de São Thiago, Florianópolis, SC, Brazil
- Sílvia Modesto Nassar, Department de Information Technology and Statistics, Federal University of Santa Catarina, Florianópolis, Brazil
- Maria Marlene de Souza Pires, Division of Paediatrics, Hospital Polydoro Ernani de São Thiago, Florianópolis, SC, Brazil
- Journal Quality of Life Research
- Online ISSN 1573-2649
- Print ISSN 0962-9343