ABSTRACT
Information plays an important role in people’s daily lives, and government information is especially critical as it encompasses a wide range of services and topics. People with intellectual and developmental disabilities (IDD) can encounter challenges when finding and understanding information, resulting in barriers to accessing and using vital information and services. This study explores how adults with IDD, their family and friends, and support staff find and understand information, specifically information shared by the Canadian government. An anonymous, cross-sectional survey was co-developed with members of local and national IDD advisory groups, including people with IDD, and distributed across Canada between March and July 2022. The survey was available in digital and print versions, with the option to receive support for completion. In total, 399 respondents participated: 219 people with IDD, 110 family/friends, and 70 support staff. The majority of participants accessed government information using the Internet, with common search topics related to finances, photo identification, and health. Respondents generally preferred having both print and digital formats available. Findings also emphasized the significant and varied roles of information liaisons, such as family and staff, in assisting people with IDD in finding and understanding information. Effective strategies and formats included reviewing information multiple times and at a slow pace, having someone explain it, and using pictures. To meet the accessibility needs of people with IDD, government agencies in Canada and internationally should provide information in multiple formats and through various sources. Additionally, when developing communications, it is essential to consult not only with families and staff but also with people with IDD themselves, as their insights are crucial in creating effective, accessible information (see Easy Read Summary at the end of this article).