Further evidence of reliability and validity of the Huntington’s disease quality of life battery for carers: Italian and French translations

Existing research suggests that family caregivers of persons with Huntington’s disease (HD) face a distinct series of problems,
linked to the complex nature of the disease. Aubeeluck and Buchanan (Clin Genet, 71(5):434–445, 2007) developed and validated a disease-specific measure used to explore caregivers quality of life and assess the efficacy of
therapeutic interventions. This current study builds on this research through the validation of French and Italian translations
of the Huntington’s disease quality of life battery for carers (HDQoL-C).

A total of 301 family carers completed the HDQoL-C. Participants were recruited through the “Euro-HDB” study which is measuring
the burden in HD across Europe and the USA.

Factor analysis demonstrated good internal consistency, reliability and congruent validity. Carers who cared for patients
with less clinically severe symptoms reported significantly better QoL than carers of patients with more clinically severe
symptoms.

Findings indicate the HDQoL-C is multi-lingual, multi-cultural and easily applicable in other languages.