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Further evidence of reliability and validity of the Huntington’s disease quality of life battery for carers: Italian and French translations

Abstract

Background  

Existing research suggests that family caregivers of persons with Huntington’s disease (HD) face a distinct series of problems,
linked to the complex nature of the disease. Aubeeluck and Buchanan (Clin Genet, 71(5):434–445, 2007) developed and validated a disease-specific measure used to explore caregivers quality of life and assess the efficacy of
therapeutic interventions. This current study builds on this research through the validation of French and Italian translations
of the Huntington’s disease quality of life battery for carers (HDQoL-C).

Method  

A total of 301 family carers completed the HDQoL-C. Participants were recruited through the “Euro-HDB” study which is measuring
the burden in HD across Europe and the USA.

Results  

Factor analysis demonstrated good internal consistency, reliability and congruent validity. Carers who cared for patients
with less clinically severe symptoms reported significantly better QoL than carers of patients with more clinically severe
symptoms.

Discussion  

Findings indicate the HDQoL-C is multi-lingual, multi-cultural and easily applicable in other languages.

  • Content Type Journal Article
  • Category Brief Communication
  • Pages 1-6
  • DOI 10.1007/s11136-012-0227-2
  • Authors
    • Aimee Aubeeluck, Division of Nursing, School of Nursing, Midwifery and Physiotherapy, University of Nottingham, Royal Derby Hospital, Uttoxeter Road, Derby, DE22 3DT UK
    • Julie Dorey, Creativ-Ceutical, Paris, France
    • Ferdinando Squitieri, Centre for Neurogenetics and Rare Diseases, IRCCS Neuromed, Pozzilli, Italy
    • Emilie Clay, Creativ-Ceutical, Paris, France
    • Edward J. N. Stupple, Department of Psychology, University of Derby, Derby, UK
    • Annunziata De Nicola, Centre for Neurogenetics and Rare Diseases, IRCCS Neuromed, Pozzilli, Italy
    • Heather Buchanan, Centre for Neurogenetics and Rare Diseases, IRCCS Neuromed, Pozzilli, Italy
    • Tiziana Martino, Centre for Neurogenetics and Rare Diseases, IRCCS Neuromed, Pozzilli, Italy
    • Mondher Toumi, University Claude Bernard Lyon I, Villeurbanne, France
    • Journal Quality of Life Research
    • Online ISSN 1573-2649
    • Print ISSN 0962-9343
Posted in: Journal Article Abstracts on 08/16/2012 | Link to this post on IFP |
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