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Research Participation Among Asian American Women at Risk for Cervical Cancer: Exploratory Pilot of Barriers and Enhancers

Abstract  

The purposes of this exploratory pilot were to describe perceived barriers to participation in cervical cancer prevention
research, and identify culturally-appropriate communication strategies to recruit Asian women into cancer prevention research.
This thematic analysis of transcripts, from focus groups and in-depth interviews, was conducted in English, Vietnamese, and
Mandarin Chinese, at a community clinic in Philadelphia, Pennsylvania. Thirty participants were either Vietnamese (35%) or
Chinese (65%). Mean age was 36.8 (SD 9.9 years). Reasons for non-participation were: lack of time, inconvenience, mistrust
of institutions and negative experiences, lack of translated materials, feeling intimidated by English, and the lack of translation
of key words or terms. Enhancers of participation were: endorsement by a spouse, monetary compensation, and a personalized
approach that offers a benefit for Asian women. To increase participation, first one must remove language barriers and, preferably,
use specific dialects. Second, one must specify if benefits are indirectly or directly related to the family or cultural group.
Asian research participants in our study consistently expressed that a significant motivator was their desire to be of help,
in some way, to a family member or to the Asian community in general.

  • Content Type Journal Article
  • Pages 1-14
  • DOI 10.1007/s10903-011-9461-x
  • Authors
    • Ellen Giarelli, School of Nursing, University of Pennsylvania, CFH 478, 418 Curie Blvd, Philadelphia, PA 19104-4217, USA
    • Deborah Watkins Bruner, School of Nursing, University of Pennsylvania, CFH 478, 418 Curie Blvd, Philadelphia, PA 19104-4217, USA
    • Ethan Nguyen, Department of Family Medicine, School of Medicine, University of Pennsylvania, 2 Gates/HUP, 3400 Spruce Street, Philadelphia, PA 19104, USA
    • Sarah Basham, School of Arts & Sciences, University of Pennsylvania, Philadelphia, PA, USA
    • Priya Marathe, School of Arts & Sciences, University of Pennsylvania, Philadelphia, PA, USA
    • Diane Dao, School of Arts & Sciences, University of Pennsylvania, Philadelphia, PA, USA
    • To Nhu Huynh, School of Arts & Sciences, University of Pennsylvania, Philadelphia, PA, USA
    • Joseph Cappella, Annenberg School for Communication, University of Pennsylvania, Philadelphia, PA, USA
    • Giang Nguyen, Department of Family Medicine, School of Medicine, University of Pennsylvania, 2 Gates/HUP, 3400 Spruce Street, Philadelphia, PA 19104, USA
    • Journal Journal of Immigrant and Minority Health
    • Online ISSN 1557-1920
    • Print ISSN 1557-1912
Posted in: Journal Article Abstracts on 05/05/2011 | Link to this post on IFP |
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