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Bereavement in paediatric oncology: programme evaluation

Objectives

The death of a child from cancer is a devastating event with long-term psychological and social consequences for parents. While bereavement support is increasingly recognised as a standard of care in paediatric oncology, structured programmes remain limited and heterogeneous.

Methods

We conducted a cross-sectional survey of bereaved parents of paediatric oncology patients treated at our institution. A structured questionnaire, developed by a multidisciplinary team, explored experiences with bereavement initiatives and preferences for supportive activities.

Results

Of 156 questionnaires distributed, 74 were returned (47% response rate). Mothers completed 51% of the surveys, fathers 35% and both parents jointly 14%. Although 70% of parents reported no perceived need for formal bereavement support, 56% found volunteer activities and 62% ongoing contact with healthcare staff to be helpful. Preferred support options included counselling with a psychologist (38%), commemorative ceremonies (34%), peer groups (30%) and self-help groups (26%). Parents bereaved for more than 3 years expressed greater interest in peer meetings and contact with clinicians. No significant gender differences were observed.

Conclusions

Parental bereavement needs are frequently underestimated and may extend beyond traditional counselling. A proactive and diversified model—integrating psychological care, peer mentorship and structured contact with healthcare teams—should be systematically offered to improve adaptation and reduce isolation among bereaved parents.

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Posted in: Journal Article Abstracts on 07/10/2026 | Link to this post on IFP |
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